Frequently Asked Questions

Patients & Caregivers

Is my data safe and private with Fawkes?

Absolutely. We prioritize your privacy and security in every step. All personal details are removed (de-identified) before any of your information is used for research or trial matching. We also store your data in secure, encrypted systems and follow strict healthcare privacy standards (like HIPAA) to keep your information safe. You remain in full control of what’s collected and how it’s used.

Do I get compensated for sharing my data or joining a study?

Yes. Fawkes believes you should share in the value your data helps create. This means that if your medical data is used in research or you participate in a clinical trial through our platform, you will be appropriately compensated for your contribution. Nothing happens without your consent, and we make sure you benefit from the impact your data has.

How does Fawkes collect my medical records? Do I have to do anything?

We handle the heavy lifting for you. With your permission, Fawkes will securely contact your past doctors and clinics to gather your medical records on your behalf. All you need to do is answer a few questions and sign a consent form (which we’ll email to you) to let us start the process. No more calling offices or chasing paperwork – we’ll keep you updated as your records come in.

Can Fawkes help me find clinical trials I’m eligible for?

Definitely. Our system automatically checks your health profile against clinical trial criteria to match you with studies you might qualify for. If a trial looks like a good fit, we’ll inform you and, with your permission, share your contact information so the research team can reach out. Don’t worry – pharmaceutical companies only see anonymized data until you decide to connect with a study, protecting your privacy at every step.

How reliable is the AI-powered patient support tool? Can I trust its answers?

Our AI Health Assistant is designed to give you trustworthy, personalized guidance. It looks at your actual medical history to tailor answers specifically to you (not one-size-fits-all advice). The information it provides comes from up-to-date, peer-reviewed medical sources, and it even includes links to those sources for transparency. The tool explains things in simple language to help you understand your health better. It’s very reliable as a support tool – but it’s not a doctor, so you should still consult a healthcare professional for medical decisions or serious concerns.

Pharma Sponsors & Researchers

What kind of data quality can we expect from Fawkes?

Fawkes provides high-quality, comprehensive patient data drawn directly from medical records. We gather complete medical histories from all of a patient’s providers – including medications, lab results, diagnoses, and more – so you get a full, longitudinal view of each patient’s health. This multimodal, long-term data (often called the “holy grail” of disease research data) offers rich real-world evidence for your studies. In short, you can expect accurate, up-to-date records that give deeper insights than fragmented charts or patient questionnaires.

Is Fawkes compliant with data privacy regulations (e.g. HIPAA/GDPR)?

Yes – data privacy and compliance are core to our platform. Fawkes is fully HIPAA compliant and adheres to other applicable regulations like GDPR, PIPEDA, and more. We implement enterprise-grade security measures (SOC2 certified infrastructure) and encrypt all patient data to ensure it’s protected and confidential. Both patients and partners can trust that all data is handled lawfully and with the highest privacy standards.

How does Fawkes recruit patients for clinical trials?

Fawkes streamlines patient recruitment by proactively matching trials with suitable patients. You provide your trial’s inclusion/exclusion criteria, and our system automatically scans our patient network to find those who meet the requirements. We pre-screen and identify eligible patients in real time, which can cut down recruitment time by over 50% compared to traditional methods. Once we find a match, we assist in connecting you with the patient (after they consent), making the recruitment process faster and more efficient.

What ethical standards does Fawkes follow in using patient data?

We uphold strict ethical standards centred on patient rights and transparency. Patients maintain ownership of their data and must give explicit consent before it’s used in any research. All shared data is fully de-identified (anonymized) when provided to researchers, so no personal identifiers are revealed. Importantly, Fawkes ensures patients also benefit from research breakthroughs – for example, patients are compensated or otherwise share the value created from their data. Our approach creates an ethical partnership where research can flourish while respecting and rewarding patient contributors.

What are the pricing and contracting options for sponsors?

We offer flexible engagement models tailored to your needs. Pricing for Fawkes’s services typically depends on factors like the number of patients involved, the scope of data access, and the length or size of your project. We work with sponsors on a subscription or project-based contract – for example, you might choose a per-study plan or an ongoing data access subscription, depending on what fits best. For detailed pricing and contract terms, it’s best to reach out to our team – we’ll be happy to discuss a solution that suits your organization’s requirements .

Can Fawkes integrate with our existing clinical workflows or systems?

Yes. Fawkes is designed to complement your current workflows rather than disrupt them. We can securely share data and insights in formats that plug into your existing systems. In practice, our platform is capable of transferring patient records or summaries directly into electronic medical record (EMR) systems or trial databases you use. We also offer support for integration via APIs or data exports, so whether it’s your clinical trial management software or an analytics tool, Fawkes can fit in smoothly. Our team will work with you to ensure any integration is seamless and meets your technical and compliance needs.
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